Lauren is back to baseline as far as her seizures. Still having the nightly grandmals but not any we are seeing while awake. She is off the clobazam for a few weeks now and are slowly working up the topamax levels. It will be a couple of months before we can tell if this helps.
1 comment:
I'm with you hating the Topamax. Naomi was on it before starting the diet. I think it was May 2008-Oct 2008 she took it. We had to get central air put in our house because of it keeping her from sweating. It also affected her speech badly. Funny thing, it is supposed to affect their appetite and make food taste awful but I remember her eating like a horse on it. We just weaned off Zonegran, waiting to see if anything changes. So far, nothing really. She killed my old laptop by spitting water on the keyboard so I lost your email along with everyone elses. LOL
Post a Comment