Friday, May 14, 2010
It has been awhile since I updated. Things have been the same these past few months. Lauren continues to have 1-3 grandmal seizures in her sleep nightly. We actually weaned one of her drugs with no withdraw seizures or worsening of her seizures. We are still waiting for the bromides. I called Caligor pharmacy (this pharmacy is in NYC and can import drugs from outside of the US). The pharmacy told me that the bromides arrived from Germany but the FDA have held it up and sent it to another one of their departments for further investigation. The pharmacy said the FDA does this occasionally and they just happened to pick this one. They told me that it is a government agency so that is why it has taken so long, it will just be a matter of time before they release it. So we are just waiting.
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