Lauren has been doing pretty good lately. She is mainly having grandmal seizures when she sleeps at night (usually 1-3 a night). Her seizures have not come back during the day but all the night seizures are effecting how she is functioning during the day. Right now we are re-introducing the carnitine supplement that we had stopped a few months ago. Her blood tests showed her extremely carnitine deficiencent (which is not unusual with this kind of diet). We are hoping this will help with her muscle strength and tone (and seizures). We can only make one change at a time, so we will work on this for a few weeks and then see what we can change next.

A lot of people have asked about Lauren's development. Before her seizures started she was totally "normal" as far as her development, if not advanced in some areas. The only thing we were starting to wonder about was her speech. Right now Lauren is delayed in most areas developmentally, mainly her speech. She is currently 3 1/2 years old and mainly speaks using one word and is starting to put 2 words together more. The words she used before she started having seizures are very clear still but a lot of the new words she has gained are very hard to understand. She goes to speech therapy weekly.

Cognitively she seems to do well and has tested to be "average" in her understanding. She just can't express herself very well, which leads to lots of temper tantrums.

She has definitely regressed in her fine and gross motor skills. She has lost a lot of muscle tone and coordination. She also goes to physical therapy weekly.

Right now our 18 month old son is starting pass Lauren in some areas developmentally. When they wake up from their naps sometimes I can't tell who is calling for me.

When we first learned of the severity of her seizure disorder I had a hard time comprehending the development part. Now my hope is that we can get her seizures stable and not worry too much about the development side. I know that she will be able to reach her "full potential", whatever that may be.

We can't thank everyone enough for your continued prayers and support, we hope you have a wonderful Easter!