Our family just got back from Aspen Grove family camp up in the mountains by our house. This has become a tradition for our family and we were concerned we would not be able to go this year.
Fortunately Lauren recovered well after her two grandmal seizures and we packed up all her food and gear and even a microwave and headed up to the mountains (only about 20 minutes from our house!). We arrived last Saturday and the next day she had 2 more grandmal seizures in her sleep. Again she recovered well and was able to do some of her activities with her age group. The BYU college girls that were her "teachers" were amazing and very willing to work with her. I think we overwhelmed them explaining the diet and all her restrictions. I still get overwhelmed hearing myself explain it! She did really good at her groups but it still is a little hard for me when I see the reality of how far behind she is compared to other kids her age. The more days she goes without seizures the faster she is picking up new skills which is really encouraging.
Anyway she did have another granmal seizure on Thursday morning in her sleep, which put her in some what of a bad mood during the day. We were able to keep in contact with her doctors while up there and they reduced her calories by another 100 on Tuesday. We are still working on getting her to loose some weight. She has lost about 1 pound in the last month and she still needs to lose a couple more. This diet has been such a wonderful blessing in our life. Even though she is still having seizures it is bringing back our little girl. We have received so many blessing and feel big and small miracles everyday. We are so thankful for all the many prayers for Lauren!
We had a great week as a family and had some much needed time together without a lot of outside stress. I will try to post some pictures.
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1 comment:
I'm so sorry that Lauren had more seizures, but so happy that she's picking things up quickly and the diet is working! I'm anxious to see you again next week! kim
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