Thursday, September 23, 2010
Yesterday Lauren's heart rate started going in the 170-180 range. The are wondering if she is getting dehydrated again. they gave some fluids and her heart rate went went down some. The doctors involved with this part of been somewhat frustrating. They want to see if her body will just regulate her urine output on its own. We know that on the ACTH at this level she was having problems. we have gone back and forth with the drs these past few days in how to approach this. Her heart rate has continued to be really high, they are now worried her pic line is infected. BUt gave her more fluids as we wait for the blood cultures to come back, her heart rate did come down a little. This evening I feel that I can finally trust the doctors because they finally admitted that they are worried and don't know exactly what to do. we are ok with that-actually very use to that. So they called in the endocrinologists to help, and I had a great conversation. The endo dr said that this reaction/side-effect is very rare, in fact she has never seen it and only read about it in some medical literature in a few cases. (So I guess the rare gets even rarer(is that even a word). The endo dr said she is going to research tonight and will have more answers some things we can do in the morning. Her seizures are not doing too good right now either, most likely the wean of the ACTH.
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1 comment:
I'm so sorry to hear she is having such a hard time. And yes, "rarer", is a word. :) Lots of love and prayers to you!
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