Well the Bromides arrived yesturday. We are going to finish weaning the clobazam before we start. We don't want her on to many medications at once. Last week I talked to some doose syndrome parents who were also starting their son on the bromides and they had to stop because it caused 3 really bad unexpected status episodes. I am always nervous starting a new medication but hearing that made things feel more scary. We will still try them because we really have no other options and it is all just trial and error. We should be ready to start them in about 2 weeks and then we will have to make a trip out to Cleveland to see Dr. Tuxhorn sometime in the next few months so she can monitor Lauren's care while on the bromides.

Here is a video link about a mom trying to help find a cure for epilepsy.


http://media.causes.com/808538?m=acb56307