Fawn,
The link to the video is not that bad as far as showing seizures. It is a radio show talking with a mom that has a daughtor that has been having seizures for since she was 2 years old. She wrote a book called "seizing the day" and is putting her effort into finding a cure for epilepsy. I just put it was awful because I hate seizures so much, but the clip has a good message. How is your daughter doing? Last I remember is you were going up to a 5:1 ratio to try to stop the nocturnal TC? Did it help, how are her seizures?
Lauren
1 comment:
Ahh, that sounds pretty good, actually. I'll have to go back and check it out. :)
Jade is doing great, thanks. We were at 5:1 for a while, but then her liver enzyme levels went crazy, so we were told to drop to 4:1 to give her liver a break. (That was in January.) After that calmed down, we jumped back to 5:1, but her symptoms started back up again, so we backed off to 4.75:1.
We just did a 50-calorie decrease and that seems to be helping the nocturnal seizures, which were actually "just" tonic seizures (lasting just a few seconds).
It just breaks my heart that Lauren's still having such horrible seizures. Why can't something work for every kid???
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