We arrived in Cleveland last night and had a good trip. Lauren had a pretty rough couple of days before we left and we had to use her rescue med Sunday night. I think Lauren knows when we are leaving to see a doctor-this is turning into a pattern!
This morning we met with Dr. Tuxhorn for over an hour. It was a great visit, she listened and asked a lot of questions trying to understand Lauren's history. She expressed the importance of trying to find out what syndrome she fits into, maybe knowing what is the better treatment plan.
After our appointment Lauren was admitted to the hospital in the Children's epilepsy monitoring unit at the clinic. Lauren has had many many EEG but never a long term EEG except when she was in a status situation and monitoring her immediate situation. They are going to monitor her for a couple of days. It is very difficult to keep Lauren in bed for this many days, she has maybe 3 feet to move in the bed. We are allowed to unhook her a couple of times a day for 15 minutes so she can walk around. Tomorrow Dr. Tuxhorn is going to stop by and talk more about what she sees in her EEG. We already feel like this trip has been worth it!
I just have to say the Cleveland Clinic is so amazing! It is such a huge hospital. It goes on for blocks and the different hospitals are mostly connected or built connected. The floor that Lauren is on is monitored by armed police. Maybe that is because she is on a children's floor? Marc and I have to have pictured badges to get in. The people in the hospital have been so helpful and friendly. We feel like they are so happy to have us here (coming from Utah), compared to Johns Hopkins the feelings seemed reversed. We are very happy that we went to Johns Hopkins for the diet, they really are the best in the world for doing the diet (confirmed again today at our appointment by Dr. Tuxhorn). But today we feel we are getting attention of the overall picture for Lauren. Dr. Tuxhorn definitely wants to keep her on the diet and not change anything with that. I will update more tomorrow.

Thank you for every ones continued support and prayers. We have felt so blessed through this experience and know it is from the many prayers offered on our behalf.