I know that it has been forever since I have posted an update on Lauren! I doubt anyone is still looking at this blog, regardless it makes a great record for us. Overall Lauren has been pretty stable since I last updated. July was a tough month for Lauren, she had been sick and it really made her seizures bad. We also had another trip to Johns Hopkins at the end of July. Unfortunately the day we landed in Baltimore she had some bad seizures and was really out of it having tons of little seizures going on. The doctors seeing her in that state suggested taking her off the diet, after talking further we decided to keep her on the diet and add a new drug that is not available in the US but is used a lot through out other parts of the world. So since the end of July we have been slowly adding this med. She still remains stable and doing good during the day but suffers with multiple seizures in her sleep every night.

We still feel that the diet has been the biggest help in her improvement but that it is not enough to make her seizure free. Right now we are working on getting an appointment for her at the Cleveland Clinic in October. There is a doctor (Dr Ingrid Tuxhorn) their that is an expert on Doose Syndrome and worked with Dr. Doose in Germany. We are still unsure if Lauren has Doose syndrome (myoclonic Astatic Epilepsy) but we are hoping that Dr Tuxhorn can give us more insight and ideas on additional treatment options to get her seizure free, which is still our hope and desire.

Lauren had a birthday this past Saturday-Sept. 19. I wanted to post some pictures. It was such a good day! Last year the night before her birthday is when she started into one of her bad hospital stay with non-stop seizures. We never really celebrated her 3rd birthday. This year she had a great day! Happy 4th Birthday Lauren!