Yesturday I was looking at my dad's phone and found these videos of last year when Lauren was coming off the diet. She was in a bad state with her seizures, happening pretty constantly. It was so fun watching her eat the food and knowing what she ate for 2 years! We stopped the diet cold turkey because I wanted to try steroids or the ACTH. We were planning on starting the ACTH but the doctors changed their minds and didn't feel comfortable putting her on the ACTH. It took 9 months after this to find a doctor willing to try the ACTH on her.
It so amazing to see how far she has come since this video!
http://www.youtube.com/watch?v=CmQgpRLOP5Y&feature=mfu_in_order&list=UL
http://www.youtube.com/watch?v=TjhGOXKC-SM&feature=related
Lauren
2 comments:
Hi--I saw your blog when I was visiting a friend of mine's blog (Overcoming Movement Disorder). My sister also has a child who had epilepsy--have you looked at getting Lauren evaluated at the Cleveland Clinic? They are incredibly thorough with their evaluations and have really helped a lot of my sister's friend's children. You can see my sister's story about their experience at http://epilepsy-hope.blogspot.com/
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