I am really behind but I have wanted to post some pictures of when Lauren was in the hospital for 2 weeks this past September. This is when she was having the very rare and serious side-effects of the ACTH. The pictures do not even show how big she really was (or all the hair that grew all over her face). All these pictures were taken after coming out of ICU where she was for almost a week prior ( I have no pictures of her while in ICU, I guess my mind was worrying about other things!). These pictures she was a lot more responsive, awake, and able to interact some. It was pretty bad while she was in ICU (really low potassium, heart problems, blood gases off etc).



Her stomach was so big! The nurses had to measure it multiple times a day to see if it was going down and not getting to big.



She had a Birthday and turned 5 while in the hospital. Family came to help celebrate. The hospital brought her a cupcake with paper candles (the video is of her "blowing" out her paper candles). She was still pretty unhappy and miserable on her birthday but was able to sit up some (which is more then she had done in the last 10 days).












This was a hard time for us. Lauren was pretty bad and we were losing all hope that she would ever get better. But we are gong on over 4 months and counting of no seizures. Her last seizure was on the day before we left the hospital. Do the doctors know what helped or caused this good period? No. Do they know how long or if it will last? No. But we are enjoying every moment while it lasts! She is doing so good!!!