Lauren is still pretty stable during the day and having 2-4 grandmal seizures in her sleep at night. The bromides are ordered and should take 7-10 days to come from Germany. Then it depends on how long it will take them to get through customs, which might take weeks. Then they just need to be sent from Caligor pharmacy in New York City to our house. I also just found out that Dr. Tuxhorn is leaving the Cleveland Clinic. I don't know where she is going for sure. We met with the new local Neurologist at Primary Children's yesterday. I was kind of hoping that maybe we could have him take over all the care for Lauren, but I don't think that is going to happen. He has had 2 experiences with bromides. One over 30 years ago when he was under another doctor and one time a few years ago, and the patient developed boils all over his body so he stopped the bromides. He thought it was a fine option to try but not wanting to look over her care on them. So we are probably going to have to make another trip out to where Dr. Tuxhorn moves. Right now we Lauren is a patient of the Cleveland Clinic so have to re-establish Lauren as a patient at the new hospital.

We are in the process of weaning Lauren off zarontin, so I really hope she remains stable through this. History has shown that she will probably go through a rough time for awhile, even the the med didn't do much.

That is all for now, and just wanted to add a side note to an earlier post about the cost of Lauren's medication. We have been very blessed to be able to afford all her medication, my comment was just pointing out the huge difference in cost compared to the diet.

As always we appreciate everyone's thoughts and prayers.