A neighbor called this morning and left a message that Lauren was on the front page of the Utah section of the Deseret News! We went and bought the paper and sure enough there she was.
http://www.deseretnews.com/article/700015549/Beauty-contestants-organize-princess-party-for-Make-A-Wish.html
Yesterday we went up to Salt Lake to the Princes Party and the kids had so much fun. They each had there own princes that spent the whole time with them. It was a great experiences. It is such an amazing organization that does so much.
A quick update on Lauren's seizures. Yesterday during her nap (right before we drove up to the party) she had a grandmal seizure. She has had 4 more since (last night while asleep and again during her nap today). I called the Cleavland Clinic today to start working on putting her on the Bromides, I have not heard back yet. Currently she is on 3 different medications, we can't (or I don't want to) add a another one without weaning one of her current medications. Four medications will have such a huge impact on her cognitively and functioning. Three is already too much for a little 4 year old. I am pretty stressed on what to do because Lauren does not handle weaning the medication very well. Even if the medication is not doing much to help control the seizures her brain is so use to the med she always has more seizures during a wean. I am also very nervous about putting her on the bromides. Just the thought of working with a vet to have them check her blood levels makes me sad. I am just so tired of all of this! I am tired of experimenting with Lauren. It is all trial and error. I don't know if a change will make her worse or help and if it does help then I wonder for how long. I have I mentioned that
I HATE SEIZURES!!!!!!
Lauren
6 comments:
:( I wish I had an answer for you.
I HATE seizures too! I wish it wasn't such a constant battle. That is so neat that she got to be a princess and in the newspaper. She is such a beautiful little girl. I can't wait to see the pictures of all the girls.
My heart is breaking for you! I wish I could do something for you.
Sarah told me about the Princess Party. I thought of you both as I read the article in the Deseret News. No princess should have to have seizures! I am so sorry that this wild roller coaster ride for your entire family continues. You continue to be in our hearts and prayers.
Keeping you in our thoughts and prayers. Lauren is blessed by having such a indefatigable mom fighting for her.
With something like that I'd be surprised if Tuxhorn doesn't want to admit her to start the meds. When she put Naomi on Depakote she wanted to watch the first 4 doses! So sad, wish we could house trade so you could be closer to CCF:) Of course I don't think 6 kids could squeeze in here!
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