Lauren seizures continue to be the same for now. She has between 2-8 grandmals at night and around 2 during her nap. I have not yet heard back from the Cleavland Clinic, which has been very frustrating. I have called almost daily and have been told that I should hear back by the next day, but no on calls. I can't do much with out their help because they are one of the only place that knows how to use the bromides. I know I am probably holding on to much that bromides might work, but some studies have shown that it is effective in resistant grandmal seizures. We don't have that many choices of meds left to try, and right now I doubt that any medicine is going to work. Right now she is still doing pretty good while she is awake. In the past though after the grandmals go for awhile then she will eventually loose control during the day.
Lauren has caused some pretty interesting things this past month. A few weeks ago we were trying to get all the kids ready for school. Lauren and Ryan were on the coach playing and then we hear Ryan (our 2 year old) start screaming out of control. My first thought was that Lauren was bugging or hitting him which is something that happens all day. But then Ryan comes into me and has blood all down back of his neck and shirt. Lauren had found a little key chain Swiss army knife and got him on the back of the neck with the little knife. It was a little crazy morning with some of the kids screaming and running around because of all the blood. It was a deep cut but after awhile we got it closed with some butterfly bandages. Probably should have taken him in to get stitches but now a days it takes a lot for me to go into the doctor.
The next week I had Ryan and Lauren strapped in their car seats and I had to run inside for a second. Lauren got out of her seat and got the bottle of sanitizer I keep in the front of the car and dumped the whole bottle on Ryan's head. When I came back Ryan was hysterical! The sanitizer had gone down the front of his face and was all in his eyes. My first thought was he was going to be blind-it was so much sanitizer. I tried to rinse it out but he kept rubbing his eyes making it worse. I called our pediatrician and they told me to call poison control. They told me to put him in the bath tub and rinse his eyes for 20 minutes. While I did this I strapped Lauren in the high chair so she couldn't cause anymore damage. When I got Ryan all taken care of I found Lauren asleep in the high chair and when I went to get her out she had a grandmal seizure. It was quite the afternoon.
Then last night Lauren got into Megan's pink grape fruit body spray and started drinking it. We had no idea how much she got but had to call poison control again. They told me what to do and said they would call back in an hour, they then said my phone number. I just told the guy, "oh great you are tracking me, you know my phone number because I had to call poison control last week." He laughed and said no the phone number shows up when we call.
Last night when we were "watching" for the drunk like symptoms from drinking the alcohol from the body spray we couldn't stop laughing. How do we tell the operator she walked like she was drunk before drinking the spray. Luckily everything turned out okay.
Now I can look back and think it has been a funny couple of weeks!
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3 comments:
OMG the hand sanitizer day was a real doozy!
You must be so super stressed out!
If you can't get answers from CCF and have the means to just call, make an appt and show up (I know easier for me than you!)
oh great! mine just fell and bit her tongue or cheek and is bleeding on daddy's shirt!
I'm so sorry! It is scary when they get things in their eyes... Evan sprayed himself in the face with kitchen cleaner the other day! Thankfully it just got his shirt, but I hosed his face of anyway. I love having Lauren in Primary though!
Tami--I don't know how you stay sane. It must be that sense of humor you have! I hope you have a good week this week with a little less drama. ;)
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