Well we had a very nice 31 days of no seizures. That ended last Thursday, I was laying next to her asleep and heard the awful sound that comes when one of her grandmal seizure starts. My heart just fell. Knowing that one seizure means more are on the way, her brain has worked its way around another drug-the 11th drug to be exact. This time the "honeymoon" just went on a little longer, almost long enough to make me feel that we might have found the right combination?! I am trying so hard to not get too discouraged. There are not many options left.

She has continued to have short grandmals in her sleep yesterday and today. Her days are still good so far, I feel that it is a matter of time before her seizures build and she will be in a bad state again. It could be in 1 month or maybe 3-4 months, who knows?

Right now the plan is to see what happens when we go to Primary Children's on Wednesday and get another IVIG infusion. Our hope is that the IVIG "ran out" of its effect before the next infusion, which we do every 4 weeks. If the IVIG helps then we would double the infusion (2g per kg over two days) every 3-4 weeks. If it doesn't help then we will stop the infusion (it is to expensive to do unless we see very definite results) and look into increasing her current dose of felbatol. She is at the maximum dose right now but our local Neurologist says that we could push it a little more if her CBC blood test improves. Right now her white blood cells are still low so we are cautiously checking it weekly.
Our next step after that is to try putting her on steroids. I want to be pretty aggresive, since we have seen this pattern too many times. I don't want to wait until she is hospitalized to try something new. I don't know if our local doctors agree with this plan? After this, I have no idea what to do. That is where I have to remind myself that this is not in my hands. I just have to keep praying that there is something out there to help Lauren. It was very nice getting to "see" my daughter again this past month. It is amazing what happens in a month of no seizures, I know she is in there if the stupid seizures could stop long enough to let her develop. Anyway, she is such a strong and determined girl such a blessing in our lives.
Thank you for all the support and prayers.