Lauren is still strugling but doing a little better for the past few hours. We gave the second dose of IVIG today, it may take awhile to see if this has helped. We had to use Ativan (like valium) 2 times because she was getting worse, so she has improved temporarily. We also started Felbatol today. This is a pretty high risk anti-convusant, I actually had to sign a release before they would give her the medicine. We had to cover the fact that the depakote was not working or making her worse. I don't know how Dr. Tuxhorn of the Cleveland is going to feel about this, of course she is out of town until the 23th. Tommorow we are going to talk about starting some kind of steroid treatment. I would really like Dr. Tuxhorn's input on this because Primary Children's experience using it for cases like Lauren is limited. In preperation of trying steroids we took Lauren off of the diet abbrutley (reccomended from Johns Hopkins). Her doctors at Johns Hopkins felt okay doing this because Lauren can't really get much worse then were she is at now. You can't do steroids and the diet at the same time. Steroids release glucose which would take you at of ketosis on the diet and stop the effects of the diet. So today Lauren in a half drunk like state ate chiken nuggets and mozzeralla sticks. She would not let me take the plate away. I wish she was not in such a bad state so she could really enjoy her food. They were getting ready to stick an ng tube in to feed her but thanks to the ativan we got a small moment where she could eat (it had been 2 1/2 days of no food because she was seizing so much). I think that is all for now. I will try to post the video my dad took of her eating.