This past week has been wonderful for Lauren. She has had no seizures (at least that we are seeing). She has been very happy and playful all week. We are cautiously hopeful about the new changes and medication we added. In the past the longest a medication has worked has been 3 weeks, we are now at 10 days. We are noticing a lot of bruising over her body- which might be a bad side effect of the medication. I really hope that if this medicine is helping that we will not have to stop it because of the side effects.
Another amazing thing has been her blood ketones and glucose levels. We have a little monitor (what diabetics use) that we test her blood levels with every morning before she eats and again at night after all her ketogenic meals. This past week her levels have been very consistent of good ketones and lower blood sugar-which is what we want. In the past we have had a hard time getting consistent numbers, they would fluctuate a lot. This is very good because the diet is the main "medication" that has helped the majority of her seizure types (drops and myoclonic seizures). Our hope and prayer is that we can find a good combination between the meds and diet to help her.
We have been so blessed by everyones prayers-thank you!