Tuesday, October 14, 2008
Sorry it has been so long since I have updated. We came home from the hospital almost 2 weeks ago. We have not yet heard from her doctors from Johns Hopkins on what the future plan is going to be. Lauren was sent home on Klonopin 3x a day. This is in the same family as Valium but used for more long term use. From what I understand it is better to use only short term because of the addictive nature. But she has done pretty good these past 2 weeks. I am just waiting for her brain to find some way around this and start having more seizures again. I have been gradually adding the MCT oil back-1 meal at a time, then waiting 3 days to add to the next. So far she has been tolerating it well. I am just doing my own thing till I hear from her doctors?!
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