Lauren has had a very hard time this past week or so. Things just kind of fell apart. We had to use her rescue medicine 3 times in 8 days to keep her out of a constant seizure. She is starting to do better but is still having drops, myoclonic, absence, and tonic/clonic seizures daily. We have no idea what happened or why she is having such a bad time. Here is our latest email from her doctor at Johns Hopkins...

"Lauren has been hard to figure out, and it has been frustrating for all of us. My opinion is that her metabolism is such that at times it appears she is calorie overloaded, gains weight, and needs to be fasted or shocked into ketosis. At other times like you are now describing she appears to run out of "fuel" (calories) in her system. If she were a diabetic (which she of course is not) I would. describe her as "brittle.
All that said we need very detailed information from you, in the form of 7 days of information documented on an hourly basis, in chart form, to include calories in, activity level, any and all sz specified by type and duration, any unusual behaviors, fluid intake by type and time, daily early morning weight in consistent fashion; early morning, mdday and evening ketone measurements in consistent fashion.
This is like a detective mystery and we need information (clues) to figure it out. So hang in there and collect this info and email it to both Z and me and we can go from there.
I bet we will end up on a very unusual and strict diet interspersed with fasting every few days that will get her under consistent control. Dr. Jim"

I don't know I already felt like we were on a very unusual and strict diet! Well its time for her midnight snack.