Sunday, July 6, 2008

Lauren's week has been up and down. Right now we are enjoying the up. Last Sunday (June 29th) we had to give her more "rescue medicine" to stop the continues seizures she was having. Everything seemed to be falling apart again. I talked to her doctor on Tuesday and they want to reduce her calories again. They are hopeful that once we get her to a good weight and have her on reduce calories that the diet will work more consistently. So on Wednesday we fasted her for 24 hours then the following day she received 300 then on the Friday she received 600. She is now at full diet at 900 calories. I apologize to our neighbors for this past week if they heard her screaming. There were a few episodes where she was screaming for 1-1 1/2 hours straight and the baby was sleeping so we took her outside. It is so hard to not feed your child! There was nothing I could do to help her or distract her. On the second day after fasting her seizures stopped. She has been 5 days with no seizures. Along with no seizures she has been amazing in her development. An average 2 year old has huge progress during this year. These past six months of seizures has taken a toll on her overall development. She has not made much progress and had lost some skills she had previously had before the seizures started especially in her coordination and speech. These past few days she has started talking so much more and even putting two words together. I am trying hard not to get my hopes up to much, we know how quickly things can change. It is a much harder fall for me when she does so good then falls apart. But we are always hopeful. We are so thankful for the kindness and support we receive from everyone it really lifts us during the hard times.

1 comment:

Kim said...

How happy we were to see your family and Lauren! We'll continue to pray for each of you and look forward to reading your blog! Thanks for such a fun visit and we look forward to more fun days in a few weeks! Take care and GO LAUREN!