Things are not to good with Lauren right now. Here is the email that I sent to her doctor tonight that summarizes her day.

Dr. Rubenstein,

These past two days Lauren has quickly gone bad. For most of the day she has been in almost this constant seizure state-Rhythmic myclonic seizures about every 1-2 seconds with weird eye blinking and staring-she had about 5 of these that lasted around 40 minutes. When she is not having these she is so irritable and screaming and she is constantly "twitching" everywhere. She has not been able to function today. She has been having drop seizures that have really hurt her -I think she will loose a couple of her teeth, it looks like someone hit her across her face, and I have wiped up blood numerous times. We gave her nasal versed at 8pm tonight, and the seizures stopped after 5 minutes. I don't know what to do when the medicine wears off tomorrow! I don't feel comfortable traveling on a plane all day with her in this condition next Monday. The only medicine we have to give her is diastat. Should I just keep giving that to her so we can travel on Monday? I feel like I should fast her till we get there because I know that would stop all this! I am still hoping that the diet will work because she has had so many good days. I am trying so hard not to worry and wait till we get to Hopkins, but I am very worried about her-she is so bad. If you could give me any direction on what to do for her during this short time till we come next week. Maybe it is nothing, I just need to know.

Thanks,

Tami