It's been a while since we've updated the blog. Sorry. Just after our last update, Tami talked to the doctors at Johns Hopkins and they reduced Lauren’s daily calories by 100 - she now gets 1100 calories per day. Following this change, Lauren had two more grandmal seizures - one on early Friday morning and early Saturday morning - around 5:30am each day. Even though these types of seizures are pretty dramatic (and traumatizing for the parents), Lauren went seizure free for the rest of both days. She was able to go to church on Sunday last week and today. Lauren really loves going to Nursery class.

This past week has been good overall. Lauren still has a few drop seizures (2-3) each day and usually in the morning. It seems that she gets better as the day goes on. On Wednesday, she was seizure free and had a wonderful day. Lauren did have another grandmal seizure on Saturday morning about 4am, and one drop seizure in the morning. After this she did great. She played outside on the swings, went down the slides and played with her sisters.

She is doing well on her diet. A typical meal for Lauren consists of butter soup (just melted butter), cream that we whip or make a shake out of, grilled chicken, and a very small portion of a fruit or vegetable. She loves her meals and eats them right up. She also gets two snacks during the day which is usually a peanut butter/butter lollipop.

She is such a courageous little girl. In her own way she understands that she cannot have regular food and the treats the other kids have. This is so hard as a parent, but little Lauren just says ok when we tell her certain foods are not good for her brain.