Sunday, March 23, 2008

Sorry it has been a few days since we have posted the latest details of Lauren. The last few days have been similar to the report on Wednesday. Lauren has not been herself and is having more seizures. She had a grand mal seizure on Friday morning about 6am. She has not had as many drop seizures - only a couple a day. Before the diet she was having up to 100 per day. The last couple of days she has been more twitchy and having the little jerk seizures. She has been very dazed and just not there at times. Yesterday morning was really bad but then after her nap she kind of snapped out of it and was more herself. Lauren is doing excellent at eating her food and keeping up with the diet. She has her three meals per day and her two snacks. She will now eat her butter as-is at the start of most meals. Her favorite snack seems to be peanut butter-butter and celery.

Today was Easter and the Easter bunny was kind enough to bring Lauren a cash register and toys rather than candy. He also was stingy with the candy with the other kids and they were all as happy as could be. Being Easter Sunday we all finally made it to church. A little late, and Lauren quite a bit late. We never know how she will wake up. After a day much like Wednesday Tami gave Lauren some more diastat (valium) to break the seizure cycle. She was doing much better tonight. The diastat seems to last about two days and keep the seizures away.

Right now we don't know if the increase in seizures is because Lauren was taken off her medications so quickly or if the diet is not working. We are hoping it is related to the medications because Lauren did have so many seizure free days when she first started on the diet. Only time will tell. Other than that, we take each day a little at a time. Again, our thanks and appreciation go out to all of you that have expressed your concern for Lauren and our family.

1 comment:

Michelle said...

Austin Family,

Hope you had a nice Easter. Glad to hear the Easter Bunny made it to your house. Marc & Tami - Your'e doing a great job with Lauren!! I applaud your hard work & patience (which I know sometimes can be very difficult) And at times, your efforts may seem futile, but know that you're doing the best you can!! The brain is a very complicated organ (one that mankind may never fully understand). Just continue to love her with all your heart & know that we love you & keep your family in our prayers daily.

Love, Michelle & Bill