Saturday, March 29, 2008

Lauren has been doing a lot better these past few days. She kind of came out of her zombie like state Thursday. It could be from the calorie increase they started on Tuesday night? She has not had a grandmal seizure in over a week. The drop and jerking seizures still go up and down but she has been herself a lot more. Today she had a bad afternoon with lots of drops and jerking. I tested her ketone levels and they were low. When ever we have tested them in the past they have been really high (which is what we want). The only thing we could trace it to was giving her a late lunch because of soccer games. Also she gets 25g of lettuce a day for a "free" food- so I brought that to the soccer game so she could snack on that. I think her not eating the lettuce with the fat messed up her ketosis. After lunch and her afternoon snack her levels were back up again and her seizures went back down. Tonight she was talking and playing like her old self again. This whole experience is so amazing! We still take everyday one step at a time but we are enjoying seeing her little personality coming through. It is also nice to see the effects of the medicine leaving. She has been spending long periods of time doing her puzzles these past few days. When she was on the medicine her attention span was very short (even for a two year old!).

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