Feb 28
Lauren continues to have 20-90 drop seizures daily plus hundreds of little jerks of her arms and legs. There are very few moments during the day where she is somewhat herself. She is still on the three medications (Keppra, Depakote, Topamx). The topamax has taken away her appetite and she has stopped talking as much. The doctors have stopped adjusting the medications until we get to the hospital. She is just so confused and very irritable from the seizures and medications. We are getting ready to leave for Johns Hopkins on Saturday March 1st. We just found out today that she does not have the metabolic disorder that would have prevented her from trying the ketogenic diet. This was a great relief to me!
Marc's mom is flying in on Friday to help us with our other children. Lauren will begin her fasting on Sunday night and will be checked in the hospital on Monday morning. While we are there Marc and I will be attending classes and learning more about the diet. We are so thankful to everyone for the many prayers that have been offered for Lauren and our family. We would appreciate anyone that would like to fast with our family on March 2nd (the day before she is checked into the hospital). We will try to keep updating this site while we are at Johns Hopkins (if possible).
Thanks,
Tami
3 comments:
We love you and will keep Lauren and your family in your prayers!! Tiff & Don
Tami, I hope it is okay that Kim forwarded on your blog. Lauren and your family are in our prayers. We will be with you on the 2nd.
Tami,
Thanks for leaving the video of Lauren. I have shown it to the whole family. I don't think until we saw this that we could even try to understand what you were going through.
We will be praying for you and fasting tomorrow.
Rodney
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